Building Trust in Genomics: Navigating Ethics and Privacy Challenges

In the evolving landscape of precision medicine, ensuring the ethical management and privacy of genomics data is paramount. This webinar will delve into the domain of Data Ethics & Privacy within Helix’s Precision Medicine Enterprise Strategy series, highlighting its critical importance to the success of genomic programs. Drawing on insights from the Helix Research Network – the largest precision clinical research network in North America – the series provides health system leaders with actionable strategies to build trust and navigate the complexities of genomic data governance.

Participants will explore:

• Proactive measures to safeguard genomic privacy and security
• The significance of informed consent and patient autonomy in genomic research
• Methods to ensure transparency, informed patient consent, and meaningful choice
• Strategies to address genetic discrimination and enhance regulatory compliance

Webinar Speakers:

Mary Margaret Jackson, JD, Legal Counsel, Parkview Health

KT Farley, JD, MS, CIPP/US, CHC, Chief Privacy Officer, Head of Compliance, Helix